Trudi, Samuel, Millie, Patrick and Jorja’s story

Samuel projectiled his first ‘milk’ breastfeed onto the wall. I didn’t know what was happening but soon got used to the constant vomiting. He had several apnoeas in the first week, and began screaming. As a first time mother, I had no idea what had hit me. Sam thankfully slept most nights from sheer exhaustion but I struggled with the idea of routine; going out was difficult and I had extra cleaning as well.

We tried positioning/rocking, diet (off dairy but not soy), chiropractors, GPs, paediatricians and medications. I also joined a reflux support group. Sam improved dramatically at around twelve months; however, he still vomits and gags easily, gets car sick and dislikes milk products and raw vegetables/salads (tickling feeling in throat).

Jess, Belle and Jordan’s story

I’ll start with the good news … even though we were told that there was virtually no chance Jordan (now 12 weeks old) wouldn’t have severe reflux and food issues like his sister, I really haven’t seen much evidence of either of them. He reacts a little to a couple of foods (tomato, spicy foods, etc) but that’s pretty common, and while he vomits constantly he doesn’t seem to be in pain, and on the odd bad day, we just use Mylanta. Plus he’s thriving at about 7kg!

Belle’s issues were a little more complex, but she’s a bright, bubbly and very energetic little girl and coming up to 3.5 years. She stopped feeding altogether between about 5 and 7 weeks of age, and was tubed at 7 weeks. We were told it would be for 48 hours, but we ended up tube feeding for 2.5 years. After a year on the NG tube, and lots of admissions, they did a couple ofoperations to set up a PEG and then Mic‐key button [low profile tube].