Recently, RISA’s admin group have been trialling a private facebook group to see how it would work if RISA were to provide this service to members in addition or as a replacement to our current forums. We would be extremely grateful if you would spend only a couple of minutes filling in the attached survey (10 questions, mostly yes/ no). We’re seeking input from members and non-members, here:
There are good reasons to be better educated about paediatric GORD.
Paediatric gastroenterology is a relatively young speciality. What is being learned about the causes of GI issues in children, like many areas of human learning, is moving faster than ever before. The pace of knowledge acquisition is astounding. An understanding of and solutions for issues that have plagued families for centuries are now very close to our fingertips. More of what these wonderful specialists know needs to be heard by the general health care profession.
Welcome to the Reflux Infants Support Association’s inaugural conference. “Gastroesophageal Reflux Disease” is quite a mouthful so please excuse the “reflux” abbreviation.
I’m Joanne Matthews, and I’m proud to be the National President of this wonderful organisation. We started in 1982 as the less than glamorous “Vomiting Infants Support Association” but the mission’s pretty much remained the same – to help parents deal with the hell-on-earth caused by a child born with severe gastro-intestinal issues. We’ve always been exclusively run by volunteers and almost entirely funded by memberships. And now we’re branching out a bit by trying to help the experts bring their knowledge and wisdom to you – the front line in care of infants and children. I cannot thank you enough for your attendance. We really believe it will make a difference to the lives of thousands of families.
If you weren’t able to make it to the 2013 conference but would like to see the presentations, they are available for access via a private youtube channel for a nominal fee! The quality of information is extraordinary. The information is provided at a nominal cost to cover the cost of filming on the day.
Why not get involved in a local group?
I wanted to share our story because it’s confronting, exhausting and difficult even when your reflux experience is mild or more typical.
It has taken me a long time to write my story down on paper, mostly because every time I think too much about it I cry. I don’t know exactly why. I do know I still feel ashamed that I didn’t realise sooner that my baby was in so much pain. I feel angry at myself for listening to doctors instead of listening to my heart. I feel guilty for letting my poor little baby cry so much and for so long because I let people convince me she was just determined or naughty or trying to control me.
Another great gluten and dairy free option from the kitchen of our erstwhile secretary…